Glut1 Deficiency Syndrome Annual Fundraiser
- mom

- Feb 14
- 1 min read
Team, pardon the use of this platform to push an item on the agenda that's not strictly keto diet related.
The only reason why Georgia is on a medical ketogenic diet, though, is because she was born with a genetic disorder called Glut1 Deficiency Syndrome. It is a neuro-metabolic genetic condition that has no cure, and its standard of care treatment is, as mentioned, a medical ketogenic diet.
There's a handful of places in the world where they are focusing the research on rare genetic disorders and, in particular, Glut1DS. One of the main hubs in the US, and the Glut1 Deficiency Foundation is the main driver of community support and research funding.
So, for us and all the other people in this world who are affected, this yearly fundraiser is something that we must mention, discuss, and promote.
Please consider clicking on the link above and donate.
Whether you can be a generous supporter, or can contribute just the cost of a ☕, please do so anyway: a coffee for you might be what's missing to reach the research funding goals, and a step forward to improve Georgia's quality of life (and everyone like her).
Thank you in advance.
Comments